As part of a larger project, we focused on developing a community engagement strategy to drive early detection of developmental delays such as Autism Spectrum Disorder and reduce the time in seeking healthcare in select districts in Delhi, Goa, Colombo and Kathmandu.
We developed a set of communication materials and tools for parents and caregivers, delivered primarily by frontline health workers. They spanned the caregiving journey from recognising child development milestones to accepting and seeking timely healthcare if a child faces development delays and entering a suitable intervention.
The project process was unique because it allowed us to co-design the outputs with stakeholders over a year. For some, this was the first time they shared their experiences with others and proposed solutions based on their lived experiences.
Role: Project manager, Research strategy & lead, Content Development | 15 months
We conducted design research across three countries with parents and caregivers, frontline health workers, health specialists and Autistic individuals to understand systemic challenges in seeking timely healthcare. This was followed by prototype testing to understand communication preferences. We used various participatory research tools through in-depth interviews and co-design workshops, including scenarios, journey mapping and circles of influence.
We conducted research with 176 individuals over a year.
The research ultimately informed the development of communication materials that addressed critical points in a caregiver's journey. This included a series of awareness posters in healthcare settings, a tool to reinforce the use of existing healthcare material, and caregiver testimonials and guides to support them along the journey.
Project ‘NAMASTE’ was done at Quicksand Design Studio, in partnership with Sangath India, Manchester University, Autism Care Nepal Society and Sri Lanka College of Paediatricians.
The project team included Reema Deshpande, Faith Gonsalves and Aditya Prakash.